You are currently browsing the monthly archive for March 2011.

I disconnected Michael’s cell phone today. It’s taken me a long time…the last time he used is phone was November 2008…but I’ve not been able to cut it off…just feeling that it’s just him disappearing…completely emotional reaction but I just couldn’t do it…

…but paying for it was ridiculous (about $50/month)

…and the reaction from me while doing it was sobbing on the phone while speaking to Verizon…

Grief is so strange.


UPDATE:

I thought my kids would think I was crazy when they heard I just now disconnected his phone but they were all very empathic and Gina said “awww” and gave me a big hug. It’s still fairly fresh for us, I guess. I did have a great weekend with the kids and grandkids, so I trudge on….

This book, Connecting through Compassion: Guidance for Family and Friends of a Brain Cancer Patient about personality and behavior issue just came out and it sounds as if it would be very helpful.

The months before Michael’s diagnosis he was not acting like himself. The personality and behavioral changes started in June of that year (he was diagnosed in September). Even after his diagnosis and treatment he started to behave strangely. Many times I was not prepared for it–like the time we went to the grocery store and he started yelling at me because I moved him away from the salad bar where he was eating everything with his fingers. Everyone in the store was looking at us.

Another day, same store, I was trying to park and he suddenly jumped out of the car. I pulled into the space designated for pregnant women and received a lot of nasty looks when I jumped out (obviously not pregnant) and chasing Michael around the parking lot where he was walking in front of cars.

Read the rest of this entry »

Michael A. DiCarlo Race for Hope 2012

We raised a good amount of money last year for the National Brain Tumor Society through our participation in the Race for Hope (see photos above).

However, it was clear we did not start fundraising early enough.

Although we made a very nice donation to the NBTS (almost 5k), our team was in a lot of debt at the end between our expenses and personal donations.

This year we are selling the MAD shirts, magnet and postage that we designed last year for the race to get an early start on fund raising.

All proceeds will go to help sponsor the 2012 Race for Hope Team and the National Brian Tumor Society

PLEASE HELP OUR CAUSE


MAD Tee Shirts

Click here to purchase Get MAD at Brain Cancer Tee


MAD Postage

This is authentic US Postal Service official postage (approved by the USPS for use on first-class mail).

All proceeds from these stamps will be donated to the Foundation and to help sponsor the 2012 Race for Hope Team

Click here to buy MAD Postage


All profits from the sale of this magnet go to help sponsor the 2012 Race for Hope team.

Click here to purchase the MAD MAGNET


Top Posts

The Michael A. DiCarlo Brain Tumor Foundation

I have set up a foundation in Michael's name through the Fidelity Charitable Gift Fund.

All donations will go toward research for the prevention, detection and treatment of brain tumors.

Click here to donate


Follow

Get every new post delivered to your Inbox.